spoons.world

Patient Experience Database

A structured, continuously updated evidence base for chronic illness — combining peer-reviewed research with real-world patient experience across 77 conditions. Built for patients and clinicians alike, with full transparency on where every data point comes from.

2,971 entries indexed77 conditionsUpdated 20 Jul 2026About this database →

2,971 results

PubMed

Examining Cost Differences in Malignant Brain and Central Nervous System Tumor Treatment Across US Military Health System Care Settings.

The objectives of this study were to determine whether the cost of care for malignant brain and other central nervous system tumors (MBT) in the US Military Health System differs between the Department of War-operated direct care (DC) network and the affiliated civilian-operated private sector care…

psc
PubMed

What You Need to Know About Sacroiliac Dysfunction.

Low back pain is the leading cause of disability worldwide, and sacroiliac dysfunction is estimated to occur in 15%-30% of those with nonspecific low back pain. Nurses are in the unique position to support and provide education to patients who may be experiencing sacroiliac dysfunction or possibly a…

sacroiliac dysfunction
PubMed

Complications and Management of Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders: A Literature Review.

edshypermobility spectrum
PubMed

Complications and Management of Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders: A Literature Review.

Ehlers-Danlos syndrome (EDS) is a group of inherited disorders affecting collagen and extracellular matrix proteins, which can cause skin hyperelasticity, joint hypermobility, atrophic scarring, and blood vessel fragility. Complications include joint dislocation, chronic pain, fatigue, functional ga…

edschronic painmast cellhypermobility spectrum
PubMed

Causal association and shared mechanisms between Graves' disease and prostate cancer: insights from Mendelian randomization, machine learning, and comprehensive bioinformatics.

Observational studies link hyperthyroidism to increased prostate cancer (PCa) risk, but causality and mechanisms remain unclear. Graves' disease (GD), the primary cause of hyperthyroidism, involves chronic immune dysregulation that may influence PCa through shared immune pathways. We performed bidir…

mast cellgraves disease
PubMed

Evaluation of long-term healthcare utilization and costs associated with COVID-19 among adults and children in the US.

This study assessed long-term healthcare resource utilization (HCRU) and direct medical costs associated with COVID-19 among adults and children in the United States. Using a large national claims database, we quantified the incremental healthcare burden during the year following a first COVID-19 di…

long covid
PubMed

Tick-borne pathogens in dogs and their ticks in France: Molecular and serological evidence from a multicenter participatory study.

Canine tick-borne diseases (TBDs) are expanding globally, representing an increasing concern for both veterinary and public health. Dogs, due to their close contact with humans and frequent exposure to ticks, may serve as valuable sentinels for zoonotic risk. Between December 2022 and December 2023,…

lyme
PubMed

Nocturnal sleep-related scratching disorder as a possible variant of NREM arousal disorder: Clinical features and polysomnographic study of four newly reported cases.

A clinical variant of NREM arousal disorder is described manifesting with predominantly injurious, and exclusively sleep-related scratching without any conscious awareness, and without a history of dermatologic disease. Four patients were clinically evaluated and underwent videopolysomnography (vPSG…

lupusidiopathic hypersomnia
PubMed

Efficacy analysis of combined nerve combing and decompression for occipital neuralgia based on the classification of neurovascular relationships.

This study set occipital pain improvement as the primary endpoint, and overall headache relief, migraine index, medication use and complication rate as secondary endpoints, to evaluate the efficacy and safety of neural combing plus decompression guided by four neurovascular relationship subtypes for…

chronic painmigrainecervical instabilityoccipital neuralgia
PubMed

The relationship between the non-high-density lipoprotein cholesterol to high-density lipoprotein cholesterol ratio and tubular atrophy/interstitial fibrosis in patients with IgA nephropathy.

Background: The tubular atrophy/interstitial fibrosis (T) lesions of the Oxford Classification is a key prognostic determinant in IgA nephropathy (IgAN). The non-high-density lipoprotein cholesterol to high-density lipoprotein cholesterol ratio (NHHR) is an emerging lipid marker, but its link with r…

fibromyalgiauciga nephropathy
PubMed

Molecular detection of Borrelia burgdorferi sensu lato in questing ticks: One year of sampling in Bologna (Northern Italy).

Borrelia burgdorferi sensu lato (s.l.) includes several genospecies responsible for Lyme borreliosis (LB), a major zoonotic disease transmitted by Ixodes spp. ticks. In Western Europe, LB incidence has risen in recent decades, with documented expansion into previously non-endemic regions. A cross-se…

lymemedian arcuate
PubMed

Comment on 'effects of locally applied water-filtered infrared a irradiation adjunctive to iloprost and carbon dioxide hand baths in patients with systemic sclerosis and severe Raynaud's phenomenon - a randomized controlled trial'.

raynauds
PubMed

Clinical transitions amid rapid expansion: a 16-year retrospective analysis of ultrasound-guided high-intensity Focused ultrasound (USgHIFU) for uterine fibroids and adenomyosis in Korea and the necessity for clinical standardization.

Since its introduction in 2010, Ultrasound-guided High-Intensity Focused Ultrasound (USgHIFU) has rapidly expanded in South Korea, despite the absence of widely accepted standardized clinical protocols. This study evaluated the long-term clinical outcomes of USgHIFU and proposed a standardized MRI-i…

fibromyalgiaadenomyosis
PubMed

The effectiveness of wrist-ankle acupuncture on post-stroke shoulder-hand syndrome: A systematic review and meta-analysis.

Shoulder-hand syndrome is one of the most common post-stroke complications. It presents with a variety of symptoms, especially pain and a limited range of motion of the wrist and hand, which negatively affect an individual's quality of life and ability to complete daily tasks. Nurse-led complementar…

complex regional pain
PubMed

CCDC77 and SLC45A3 mediate the genetic mechanism of Hashimoto's thyroiditis through IL-6.

Hashimoto's thyroiditis (HT) is a common autoimmune thyroid disorder with a complex genetic background. Interleukin-6 (IL-6) has been implicated in its pathogenesis, but the genetic mechanisms remain unclear. Two-sample Mendelian randomization (MR) using expression quantitative trait loci (eQTL) and…

hashimotos
PubMed

Environmental shaping of tolerance failure in autoimmune liver diseases: a phenotype-specific framework with primary biliary cholangitis as the strongest model.

Autoimmune liver diseases (primary biliary cholangitis, PBC; primary sclerosing cholangitis, PSC; autoimmune hepatitis, AIH) are three distinct, organ-specific autoimmune disorders that share loss of tolerance as the central pathophysiological mechanism but differ in target tissue, age of onset, gen…

psc
PubMed

E4BP4 restrains effector-memory CD8+ T cell responses in systemic lupus erythematosus.

Increasing evidence shows that CD8+ T cells are the pathogenic mediators of tissue injury in systemic lupus erythematosus (SLE), sustaining the chronic inflammation through the accumulation of long-lived cytotoxic memory populations. However, the transcriptional mechanisms that prevent the aberrant…

lupus
PubMed

Safety monitoring of bivalent, quadrivalent, and 9-valent human papillomavirus vaccination in Japan: The vaccine effectiveness, networking, and universal safety (VENUS) study.

Safety data on human papillomavirus (HPV) vaccination in the Japanese population remain limited owing to the lack of healthcare databases available for vaccine safety assessment. In this study, we assessed the risk of adverse events of special interest (AESIs) following HPV vaccination among females…

potsmigrainepcos
PubMed

Atypical Wiskott-Aldrich syndrome presenting with normal platelet volume and end-stage renal disease: from misdiagnosis as ITP to combined transplantation.

We report a 30-year-old male with a novel WAS mutation (c.252C > A, p.F84L) who was misdiagnosed with immune thrombocytopenia (ITP) for years. Despite persistent thrombocytopenia, his mean platelet volume remained normal, an atypical feature of Wiskott-Aldrich syndrome (WAS). His cours…

iga nephropathy
PubMed

Clinical and genetic association of comorbid provisional PMDD and ADHD in female patients with bipolar disorder.

Premenstrual dysphoric disorder (PMDD) is a common comorbidity in bipolar disorder (BD), and its association with severe illness course and other comorbidity in BD has been reported. This study aims to investigate clinical characteristics and polygenic risk features of the subgroup with DSM-5-based…

pmdd
Page 1

Browse by category

Jump straight to a condition group

Core Spoonie

FibromyalgiaME/CFSPOTSDysautonomiaEhlers-Danlos SyndromeHypermobile EDSMCASLong COVID

Autoimmune

Lupus (SLE)Rheumatoid ArthritisMultiple SclerosisSjögren's SyndromeHashimoto's ThyroiditisAddison's DiseaseMyositisAntiphospholipid SyndromeGraves' DiseaseMixed Connective Tissue DiseaseCoeliac DiseaseSarcoidosis

Hormonal & Reproductive

EndometriosisAdenomyosisPMDDPCOSVulvodyniaLichen SclerosusChronic Pelvic PainInterstitial Cystitis

Neurological

MigraineChronic PainSmall Fiber NeuropathyTrigeminal NeuralgiaComplex Regional Pain SyndromeIdiopathic Intracranial HypertensionFunctional Neurological DisorderOccipital NeuralgiaNew Daily Persistent Headache

Gastrointestinal

Crohn's DiseaseUlcerative ColitisIrritable Bowel SyndromeGastroparesisPrimary Sclerosing Cholangitis

Structural & Vascular

Chiari MalformationTethered Cord SyndromeCervical InstabilityTarlov CystsHypermobility Spectrum DisorderThoracic Outlet SyndromeSacroiliac Joint DysfunctionMedian Arcuate Ligament SyndromeNutcracker SyndromeMay-Thurner Syndrome

Sleep & Energy

NarcolepsyIdiopathic HypersomniaChronic FatiguePost-Exertional MalaiseBrain Fog

Rare & Under-researched

Mitochondrial DiseaseHereditary AngioedemaSystemic MastocytosisPeriodic Fever SyndromesPrimary ImmunodeficiencyVascular EDSMyasthenia GravisNeuromyelitis OpticaRelapsing PolychondritisBehçet's DiseaseVasculitisIgA NephropathyAdult-Onset Still's DiseaseUndifferentiated Connective Tissue DiseaseSolar Urticaria

Content sourced via official APIs from Reddit, YouTube, and PubMed. All sources link to originals. No personal health data is stored or profiled. YouTube videos use click-to-load embeds to protect your privacy. Search logs are pseudonymised. Learn more