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Patient Experience Database

A structured, continuously updated evidence base for chronic illness — combining peer-reviewed research with real-world patient experience across 77 conditions. Built for patients and clinicians alike, with full transparency on where every data point comes from.

8,822 entries indexed77 conditionsUpdated 19 Oct 2026About this database →

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The database is updated nightly. Some conditions may have limited content.

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Core Spoonie

Fibromyalgia ME/CFS POTS Dysautonomia Ehlers-Danlos Syndrome Hypermobile EDS MCAS Long COVID

Autoimmune

Lupus (SLE)Rheumatoid Arthritis Multiple Sclerosis Sjögren's Syndrome Hashimoto's Thyroiditis Addison's Disease Myositis Antiphospholipid Syndrome Graves' Disease Mixed Connective Tissue Disease Coeliac Disease Sarcoidosis

Hormonal & Reproductive

Endometriosis Adenomyosis PMDD PCOS Vulvodynia Lichen Sclerosus Chronic Pelvic Pain Interstitial Cystitis

Neurological

Migraine Chronic Pain Small Fiber Neuropathy Trigeminal Neuralgia Complex Regional Pain Syndrome Idiopathic Intracranial Hypertension Functional Neurological Disorder Occipital Neuralgia New Daily Persistent Headache

Gastrointestinal

Crohn's Disease Ulcerative Colitis Irritable Bowel Syndrome Gastroparesis Primary Sclerosing Cholangitis

Structural & Vascular

Chiari Malformation Tethered Cord Syndrome Cervical Instability Tarlov Cysts Hypermobility Spectrum Disorder Thoracic Outlet Syndrome Sacroiliac Joint Dysfunction Median Arcuate Ligament Syndrome Nutcracker Syndrome May-Thurner Syndrome

Sleep & Energy

Narcolepsy Idiopathic Hypersomnia Chronic Fatigue Post-Exertional Malaise Brain Fog

Rare & Under-researched

Mitochondrial Disease Hereditary Angioedema Systemic Mastocytosis Periodic Fever Syndromes Primary Immunodeficiency Vascular EDS Myasthenia Gravis Neuromyelitis Optica Relapsing Polychondritis Behçet's Disease Vasculitis IgA Nephropathy Adult-Onset Still's Disease Undifferentiated Connective Tissue Disease Solar Urticaria

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