Spaces
Community spaces organised by experience and condition.
General
For the Caregivers
Supporting someone with chronic illness is its own kind of hard. This space is f…
Has Anyone Tried...
Community knowledge on treatments, approaches, and things that helped (or didn't…
New Here
Just diagnosed, just found this community, or just figuring things out. You're w…
No Judgment
The things you're afraid to say out loud. Taboo thoughts, messy feelings, compli…
Patient Advocates
For people doing the work of translating patient experience into policy, researc…
Rest Stop
Low-effort, low-expectation. Gentle things. Quiet things. A place to just be.
SOS
When today is too much. No explanation needed. We're here.
You're Not Imagining It
For when you need someone to believe you. Share experiences of medical gaslighti…
Condition-specific
EDS
Ehlers-Danlos Syndrome — hypermobility, pain management, and the comorbidity maz…
Endometriosis
Endometriosis experiences, treatments, and the fight to be taken seriously.
Fibromyalgia
Living with fibromyalgia — what helps, what doesn't, and what it actually feels …
Long COVID
Recovery, adaptation, and community for those navigating life after COVID.
Lupus
Life with lupus. Flares, fog, and the full picture.
ME/CFS
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome community space.
POTS
Postural Orthostatic Tachycardia Syndrome — tips, experiences, and solidarity.